Fifteen-week-old Daisy Evans has cystic fibrosis, a genetic condition that affects the lungs and pancreas.
A mother has fired back at online critics who slammed her for giving her infant daughter a form of physiotherapy that harsh commenters have deemed abusive, saying she believes the mean remarks come from a place of ignorance and that she’ll do whatever is necessary to make her child feel better.
Daisy Evans, of Birmingham, England, has cystic fibrosis, a genetic condition that affects the lungs and pancreas. The 15-week-old baby tested positive for one rare strand and one common strand of the condition, for which there is no cure.
“It affects everything, every outing [and] holiday, all the family, for life. We never get a day off,” Daisy’s mother, Sam Carrier, told InsideEdition.com.
As the mother-of-two and her family learned what caring for Daisy would entail, she decided to share parts of their life with others in an effort to spread awareness and help raise funds for research into medications and a possible cure.
Carrier created the Daisy Evans Journey Facebook page, posting updates on her little girl’s progress and insights to their daily life.
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On December 24, Carrier shared what her daughter’s “morning physio” looks like, writing, “I realize this is shocking if you don’t realize why. But trust me it’s not as shocking for u as it is for us [cystic fibrosis] moms/ dads who are told when our babies are 2 and a half weeks old that we need to do this to our child to try prevent lung damage.”
Carrier included an almost five-minute-long video to Facebook of the therapy, showing a relaxed Daisy lying in her lap as she patted firmly on the baby’s chest.
"The treatment lasts 25 minutes and is 3 times a day. It doesn't hurt her we are taught how to do it properly so it doesn’t. Generally she just falls asleep," Carrier wrote. "Or she lies there smiling at me. It makes them feel better. It’s like when we have an irritating cough and we finally get it off our chest, how much better we feel. This is what it does for them."
Though many Facebook users wrote messages of support, some online commenters who apparently didn’t understand what the 29-year-old mother was doing accused her of abuse, she said.
“You’ll break her ribs,” one user wrote.
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“Omg stop,” another posted.
Some were less polite, resorting to insults and threats to voice their disapproval, Carrier said.
“I did start to get messages calling me a f****** b****, a child abuse[r], one woman said I was a waste [of] sperm and someone said that me and Daisy should be killed,” she told Edition.com.
Carrier doesn’t regret posting the video of the therapy session — something she needs to do for her daughter up to four times a day — saying she was proud of the awareness the video and ensuing attention has led to.
Speaking directly to her “trolls,” Carrier said: “I’d first [say] educate yourselves before you accuse people of beating their child. I’m extremely strong so [the comments] never upset me."
Most of all, what matters is Daisy, Carrier said.
Referring to her as their “perfect beautiful little girl,” Carrier wrote on a JustGiving page dedicated to her daughter, “We love you so much and will fight for your right to a life unlimited every day."
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