Texas Child Battling One of the Rarest Fatal Diseases in the World

Kirstie and Eric Austin's daughter is living with one of the rarest fatal diseases in the world. In 2021, Emma was rushed to the hospital after having a seizure. Genetic testing determined she has Batten disease. Younger children usually don't live more than five or six years after symptoms begin, according to the Cleveland Clinic. "That is the most hopeless, helpless feeling you can carry as a parent," Kirstie Austin, Emma's mother, tells Inside Edition Digital's Andrea Swindall.